Facing a life of loose limbs
The Washington Post recently featured patient Kelly Koep in an article by Jeff Leen. Kelly shares her experiences living with Ehlers-Danlos syndrome, or EDS, a genetic disorder that can cause frequent bruising, joint hypermobility, skin hyperelasticity and weakness of tissues, and her hope for the future following a spinal fusion by Dr Henderson. In addition to the article, there is an exceptional gallery featuring photos, like the one to the right, by Michael S. Williamson.
To learn more about Ehlers-Danlos syndrome, watch Dr. Henderson's EDS presentation during a Chiari & Syringomyelia Foundation seminar and visit the The Ehlers-Danlos National Foundation
Photo by: Michael S. Williamson/The Washington Post
Related Posts
December 5, 2022
Patient-Reported Outcomes Following Sectioning of the Filum Terminale for Treatment of Tethered Cord Syndrome Associated With Ehlers-Danlos Syndrome
December 5, 2022
Atlanto-axial rotary instability (Fielding type 1): characteristic clinical and radiological findings, and treatment outcomes following alignment, fusion, and stabilization
December 5, 2022
Refractory Syncope and Presyncope Associated with Atlantoaxial Instability: Preliminary Evidence of Improvement Following Surgical Stabilization
